WATCH: Living with your ICD -- The "therapy"

In this third clip of the series “Living with your ICD”, the patient asks the doctor what he should expect to feel in the event of a shock to the heart.

The doctor‘s response is a long spiel on how each “therapy” is different (he never calls it a shock), how it depends on your heart’s behavior and on your personal perception.

“This is a common concern among new ICD patients. The fact is, each therapy is different. Depending on how your own heart is behaving and your personal perception. Remember, this is an intelligent device that your doctor can set to deliver the smallest amount of energy you need to regain control of your normal heart rhythm.”

Compare the above with a description from a patient who has actually been shocked. His own words.

“If the devil had a mechanical bull which shot electrical bolts out of its devil bull horns, and this bull ran full tilt down a steep hill and gored you in the chest, then you’d know how this $#!T felt!!! I’m sorry that some of you can identify with this.”

(Read the full post here.)

It would be much nicer to hear them acknowledge that no one can really tell you how it feels to be shocked in the heart unless they actually have an ICD that’s gone off!

Watch this overoptimistic, candy-coated, patronizing answer below.

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A four-wheeled defibrillator.

I flipped the page and the ad immediately caught my eye. The headline read "A four-wheeled defibrillator."

The rest of the copy said:

Pump a little adrenaline into your life with the Impreza WRX. 265-horsepower provides the thrust. Symmetrical All-Wheel drive provides the grip. Combined, they deliver a 0 to 60 time of just 4.7 seconds, and a shock to your heart every time you hit the accelerator.

I even like the car, but I can guarantee you that I don't want what the ad promises.

(Seen on DETAILS magazine, November 2009)

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So, it has been exactly four days since the doctors at Stanford turned off my ICD after one of my leads fractured. This was done to help me avoid the unpleasant experience of an inappropriate shock. That is the clinical name for a defibrillating shock that happens by mistake; when your heart is not really in a dangerous arrhythmia. By some handy programming and a bit of luck, I was able to avoid that experience.

I have had my ICD for three years. During that time, I have ridden the full roller coaster ride of emotions from fear, loathing, joy, relief, anxiety and anger. It has been with the diligent search of knowledge and the support of some really incredible people that I have survived all this. After all that, you would think that having the darn thing go silent for a few days would be a relief… it has been anything but.

I have long grown used to the little bumps and jiggles that are my heart. Even the breath stealing flutter of a NST doesn’t freak me out anymore. Or at least it didn’t until last Friday. Now every little extra beat is sending me through the roof. How funny that the thing in my chest that I have cursed and hated is now the thing I miss.

In my logical mind, I know they would have never let me out of the hospital on Friday if I were at severe risk of V-fib. But in the rest of my mind, it is freaky to feel my heart mis-behave and know that there is no back up in place. As I have gone through my days I wonder if people around me would know what to do if I suddenly fell over. I have been worried about being alone just in case something goes wrong. I never would have expected this feeling but I have to admit, I miss my ICD. I hate that I have to go through another surgery to fix it, but I can’t wait to get in all patched up and get back to hating it again.

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WATCH: ICD saves life of Belgium soccer player.

I don’t know how much explaining is necessary here. This amazing video says it all.

In the clip, Anthony Van Loo, a 20-year old Belgium soccer player collapses during a match and is resuscitated by his Implantable Cardioverter Defibrillator (ICD). The device delivers a shock to restore his heart rhythm.




Most of the press has been reporting the incident as a heart attack. This is not accurate. Instead, Van Loo must have suffered what is called an “arrhythmia”. Arrhythmias are disturbances in the normal heart rate and electrical rhythm, and are usually life-threatening. Two of the most dangerous types of arrhythmia are called Ventricular Tachycardia (VT) and Ventricular Fibrillation (VF). Such abnormally fast heart rhythms prevent the heart from pumping blood to the brain, resulting in loss of consciousness. If left untreated, these dangerous rhythms will deteriorate into a cardiac arrest. Read about the difference between cardiac arrest and heart attack.

According to this Time story (Saving Athletes from Cardiac Arrest, by Carolyn Sayre), “Sudden Cardiac Arrest [...] affects more than 400,000 people in the U.S. and is the leading cause of death in competitive athletes.”

Van Loo is known to suffer from an unspecified heart condition that makes him susceptible to life-threatening arrhythmias. He’s been allowed to return to playing soccer after the implantation of an ICD.

I'm sure glad I have an ICD. Truly amazing stuff!

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